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11 June 2013 @ 05:32 pm
Hello  
Well, this group doesn't seem to be bustling, but not much in livejournal land really seems to be much anymore really. I guess I will introduce myself and see if any of you respond anyway.

My name is Michele and I was just diagnosed this last Friday. My hearing has been an issue for many years as well as the tinnitus of varying degrees and crazy noises (would you believe I even get cello at some points?) the vertigo did not start until this last February. I have been bounced around between audiologists,neurologists had MRIs, CT scans and no one could tell me anything. Finally I got an ENT that knew what he was doing and he gave me the good/bad news.

I say good/bad because he said if I adhered to a strict diet that there was a possibility that I could recover some of my hearing, which would be so amazing (I am really trying to not get my hopes up too high) but wow, this is forever, which is so overwhelming. He started me on diuretics and potassium supplements and wants to see me in a few weeks for bloodwork and again for another hearing test in a couple of months. I almost fainted in the front yard this morning because the diuretics made my blood pressure drop incredibly low (I am a pretty tiny person) and now I have to go back in and we have to figure something else out.

I am wondering how many of you are using a strict diet and how long did it take for the symptoms to ebb and to what degree did they go away and id you took the pills, did you have to try a bunch of combinations before you found the right one or were you able to do it with diet alone. Did you go through a phase where you felt like it was all just too much? Did you have support or did you grab the disease by the balls and do it alone? 
 
 
Current Location: Portland Oregon
Current Mood: curiouscurious
Current Music: Coil=The tenderness of wolves
 
 
 
redwolfgirl: pic#80323120redwolfgirl on June 14th, 2013 05:36 am (UTC)
mckavian is correct the weather especially the storms can play hell with the dizziness. For me I also have problems with heat if the temp outside is in the the 100 I am going down and not such a great day for me. Luckily in Portland just recently moved from near there to New Mexico this is not such a problem. (I have been friends with him here on LJ for years)
You will learn your triggers and I advise to stay away from them if you can. One of my triggers is the high pitched laughter or pain of small children which I do not stay away from I love the kids at my job and in my family to much.

absous: a bit battyabsous on June 14th, 2013 07:51 pm (UTC)
The high pitched scream of toddlers has set made me uncomfortable for the last few years as well. I have not been around it since the vertigo set in however. I wonder if that would trigger something now? I also lived in Austin for 3 years and couldn't tolerate the heat and had to move back here.

Wow. Both are things I would never have considered to be a part of any of this. What a madcap disease this is!
redwolfgirl: pic#80323120redwolfgirl on June 15th, 2013 12:36 am (UTC)
Yeah it is pretty funky and varies from person to person.
McKavianmckavian on June 24th, 2013 11:28 pm (UTC)
(pets wolfy)
redwolfgirl: pic#80323120redwolfgirl on June 26th, 2013 01:02 am (UTC)
*enjoys being pet*